tag:blogger.com,1999:blog-71109884895524555612024-02-08T00:53:52.690+00:00"In The Blink Of An Eye" Poems by Adam BojelianWinner of Brit Writers
Special Achievement Award 2010 and Gold Blue Peter Badge.
Thank you for visiting my blog, I hope you enjoy reading my poems and hearing something about my life.Unknownnoreply@blogger.comBlogger89125tag:blogger.com,1999:blog-7110988489552455561.post-83153323653582576952022-11-10T11:36:00.000+00:002022-11-10T11:36:22.855+00:00#AdsTalk23 Professor Dr Ruth Norway will give the 2023 Adam Bojelian Memorial Talk<p></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbD7YdWtBIxA4hZCVkQS8c54SOsljcTEyDrctgc9Eg6_H-qwbvIvJ72grLYpLjf_CcSTEIh6oh5j0YX-kr1_ShxAu4NvAnoBQ8fIuCP0Dav2q8FjL0nkmn8xgn8lxwEb_reHwfUG0HPs9uUL2qxM3Z8qxOs2i5-vT1qsK8rOpQ5MqvJ9-0GMKWGm1c/s320/IMG_0829.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="240" data-original-width="320" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbD7YdWtBIxA4hZCVkQS8c54SOsljcTEyDrctgc9Eg6_H-qwbvIvJ72grLYpLjf_CcSTEIh6oh5j0YX-kr1_ShxAu4NvAnoBQ8fIuCP0Dav2q8FjL0nkmn8xgn8lxwEb_reHwfUG0HPs9uUL2qxM3Z8qxOs2i5-vT1qsK8rOpQ5MqvJ9-0GMKWGm1c/s1600/IMG_0829.JPG" width="320" /></a></div><br /> <p></p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 0px;">Professor Ruth Northway will give the 2023 Adam Bojelian Memorial Talk <span style="box-sizing: border-box; font-weight: 700; padding-top: 0px;">'Equality, diversity and inclusion in healthcare; moving beyond the policy to embedding in practice</span>', chaired by Rob Webster.</p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;">We will be returning to a face-to-face event in 2023 at AdsPlace, Horizon Centre Leeds.</p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;">Anyone interested in health and social care and disability is warmly welcome to this free event. As always with AdsTalks, there will be plentiful opportunity for all delegates, who wish to do so, to discuss the issues raised. Admission will be by ticket only.</p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;"><span style="box-sizing: border-box; font-weight: 700; padding-top: 0px;">Timetable</span></p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;"><span style="box-sizing: border-box; font-weight: 700; padding-top: 0px;">12.00-12.30: </span>Opportunity for delegates to network. A free sandwich lunch will be provided by the Adam Bojelian Foundation CIC.</p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;"><span style="box-sizing: border-box; font-weight: 700; padding-top: 0px;">12.30-13.30</span>: Talk by Professor Ruth Northway.</p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;"><span style="box-sizing: border-box; font-weight: 700; padding-top: 0px;">13.30-14.30</span>: Discussion of issues raised chaired by Rob Webster.</p><p><span style="font-family: arial;"><b>Full details and the link to book HERE<a href="https://www.eventbrite.co.uk/e/the-adam-bojelian-memorial-talk-adstalk23-by-professor-ruth-northway-tickets-450423397507" target="_blank">#AdsTalk23</a></b></span></p><p><span style="font-family: arial;"><br /></span></p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;"><span style="box-sizing: border-box; font-weight: 700; padding-top: 0px;">More information</span></p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;"><span style="box-sizing: border-box; font-weight: 700; padding-top: 0px;">Dr Ruth Northway</span> OBE is Professor of Learning Disabilities at the Faculty of Life Science and Education, University of South Wales, a post she has held for twenty years. A learning disability nurse by background she has worked in a range of residential and community settings before moving to work in nurse education. Her key areas of interest relate to the health and well-being of people with learning disabilities, safeguarding and the use of participatory/inclusive research approaches.</p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;">You can follow Ruth on Twitter @NorthwayRuth</p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;"><span style="box-sizing: border-box; font-weight: 700; padding-top: 0px;">Rob Webster </span>CBE is Chief Executive for the West Yorkshire and Harrogate Health and Care Partnership (Intergrated Care System). This sees him bring together West Yorkshire and Harrogate health and care leaders, organisations and communities to deliver ambitious plans for improved health, care and finances for 2.7 million people. Rob is an active member of the NHS Assembly and contributes to a number of national programmes.</p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;">Rob has worked in healthcare since 1990 taking on national leadership roles in the Department of Health on policy, transformation and delivery. He has been a director for both the Prime Minister’s Delivery Unit in the Cabinet Office and a national public/private partnership. He was Chief Executive of the NHS Confederation between 2014 and 2016, having proven to be a successful Chief Executive in the NHS since 2007, running a number of commissioning organisations and providers of NHS services. He has chaired formal cancer, primary care, community trust and learning disability networks.</p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;">Rob is defined by a values based approach to leadership. He is a visiting Professor at Leeds Beckett University and was proud to be made a Fellow of the Queen’s Nursing Institute in 2014. In May 2016, Rob became an Honorary Fellow of the Royal College of General Practitioners. In 2020 he was made a Commander of the Order of the British Empire (CBE).You can follow Rob on Twitter @NHS_RobW</p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;"><span style="box-sizing: border-box; font-weight: 700; padding-top: 0px;">About Adam Bojelian</span></p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;">Adam Bojelian was born in Hampshire, England in 2000 and died in Yorkshire from sepsis in 2015. He lived most of his life in Edinburgh, Scotland.</p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;">Adam acquired cerebral palsy at birth and went on to develop multiple health needs. Despite this, until his last months Adam lived a full and active life. He was educationally very bright, being top of the class in all subjects in mainstream school.</p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;">Aged just ten years old, Adam won the first of many national and international awards for writing, a Brit Writers award, followed very quickly by a gold Blue Peter badge. Adam gained international recognition and worldwide media coverage when at Christmas 2012, his poem Christmas Gibbons, set to music by a Hollywood musician, reached number 2 in an iTunes Chart.</p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;">As Adam’s fame spread, he began using his voice to tell the world about his experiences living with cerebral palsy, especially the challenges he faced attending school, due to lack of support and not being listened to by some health professionals, despite his immense knowledge and experience of his own health needs. Adam blogged about his experiences, he was interviewed by the BBC and others and was also invited to give a talk to Members of the Scottish Parliament, which he did using his iPad voice.<span style="box-sizing: border-box; font-weight: 700; padding-top: 0px;"></span></p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;">As he entered his teenage years, Adam was increasingly commissioned by national organisations to write for them. Rob Webster, the then CEO of the NHS Confederation commissioned Adam to write a poem on leadership, which was read at that organisation’s annual conference and is now widely used by the NHS and other bodies. The Royal College of Paediatrics and Child Health asked Adam to write a rap to celebrate the launch of Disability Matters, a national training resource, to which Adam contributed, for everyone working with children and young people, to help challenge disability discrimination, particularly in healthcare. Adam was also commissioned by a national charity to write a lullaby to celebrate the birth of Prince George. Adam loved music and set his poem to a piece by his favourite classical composer Mozart.</p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;">Adam became a much loved voice on twitter, enjoyed by thousands. He was well known for his ability to celebrate the good, whilst highlighting in a positive way where improvement is needed. In 2012 The Scotsman newspaper named Adam as one of ’40 people who put Edinburgh on the map in 2012′ and in 2013 Adam was listed on The Independent on Sunday’s ‘Happy List’, identifying him as one of the people who brought the most happiness to the UK that year.</p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;">Since his death, Adam’s legacy lives on. National guidance from bodies including the National Institute for Health and Care Excellence (NICE) have dedicated national guidance to Adam. Several PhD scholars have dedicated their PhD thesis to Adam and academic books and book chapters have likewise been dedicated to him, recognising the huge contribution his blogs, talks and insights contributed to our understanding of the experiences of children living with disability, especially in healthcare.</p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;"><span style="box-sizing: border-box; font-weight: 700; padding-top: 0px;">The Adam Bojelian Foundation CIC(AdsFoundation), a not-for-profit organisation providing education and training in healthcare law and a weekly free advice clinic, builds on the work Adam started, and his determination to improve the well-being of all patients, families and staff. You can follow AdsFoundation director Dr Zoe Picton-Howell (Adam's mum) on Twitter @PictonZoe and find its website at </span><a href="https://theadsfoundation.org/" rel="nofollow noopener noreferrer" style="background-color: transparent; box-sizing: border-box; cursor: pointer; text-decoration-line: none;" target="_blank"><span style="box-sizing: border-box; font-weight: 700; padding-top: 0px;">https://theadsfoundation.org</span></a> .</p><p style="background-color: white; box-sizing: border-box; color: #6f7287; font-family: "Neue Plak", -apple-system, BlinkMacSystemFont, Roboto, "Helvetica Neue", Helvetica, Tahoma, Arial, sans-serif; font-size: 16px; line-height: 1.5rem; margin: 0px; padding: 10px 0px 0px;"><br /></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-39154082835115361872022-05-11T14:17:00.000+01:002022-05-11T14:17:23.788+01:00The Adam Bojelian Foundation CIC<p> Adam's family founded the Adam Bojelian Foundation CIC a community interest company in 2020.</p><p>The Foundation is a key part of Adam's legacy.</p><p>You can link to the Foundation where you will find all the Learn With Dr Dog Films, links to all the Adam Bojelian Memorial Talks and a host of resources on healthcare law, ethics and communication from this link:</p><p><a href="https://theadsfoundation.org/" target="_blank">The Adam Bojelian Foundation</a></p><p>All Adam's works will continue to be available on this website.</p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-2969944108263416742022-01-23T09:17:00.002+00:002022-01-23T09:17:40.924+00:00Booking Open for AdsTalk22 with Dr Peter Sidebotham <p> Booking is now open for #AdsTalk22 with Dr Peter Sidebotham, on-line on 15th March 2022.</p><p>Click on this link for full details and to book your free place. </p><p><a href="https://theadsfoundation.org/event/the-8th-adam-bojelian-memorial-talk/">https://theadsfoundation.org/event/the-8th-adam-bojelian-memorial-talk/</a></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-64030007598005744472020-11-05T10:07:00.000+00:002020-11-05T10:07:15.153+00:00Dr Karen Horridge to give 6th Adam Bojelian Memorial Talk 'Equal Outcomes for all disabled children?'<p> </p><p></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6pxBO3FmzB4wJ3BPEVLPpHhUGDdyy7Wu-_vy7x_zHj74490NydYRmcgLHJl52_5tq5MVNMMK6Dc7KKMY7_IpqAD9S-0x2I_pmLhZwhBbHadTZPn5qMFojLKML9LNRRYGelF2_RyqyAtY/s2048/AdsTalk21pic.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="font-size: medium;"><img border="0" data-original-height="1536" data-original-width="2048" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6pxBO3FmzB4wJ3BPEVLPpHhUGDdyy7Wu-_vy7x_zHj74490NydYRmcgLHJl52_5tq5MVNMMK6Dc7KKMY7_IpqAD9S-0x2I_pmLhZwhBbHadTZPn5qMFojLKML9LNRRYGelF2_RyqyAtY/s320/AdsTalk21pic.png" width="320" /></span></a></div><span style="font-size: medium;"><br /><span style="background-color: white; font-family: arial;"><br /></span></span><p></p><p><span style="background-color: white; font-family: arial; font-size: medium;">Booking is now open for the <b>6th Adam Bojelian Memorial Talk</b> <i><b>#AdsTalk21</b></i> by <b>Dr Karen Horridge </b>(@KarenHorridge)</span></p><p><span style="background-color: white; font-family: arial; font-size: medium;"><b>Equal Outcomes for all Disabled Children?</b></span></p><p><span style="font-family: arial; font-size: medium;"><span style="background-color: white;">Chaired by Rob Webster (@NHS_RobW)</span></span></p><p><span style="font-family: arial; font-size: medium;"><span style="background-color: white;"><br /></span></span></p><p><span style="font-family: arial; font-size: medium;"><span style="background-color: white;">Due to Covid-19 #AdsTalk21 will be on-line but still with plenty of opportunity to join in the discussion.</span></span></p><p><span style="font-family: arial; font-size: medium;"><span style="background-color: white;">Please spread the word, all welcome.</span></span></p><p><span style="font-family: arial; font-size: medium;"><span style="background-color: white;">Click here for more details and to book your place:</span></span></p><div class="separator" style="clear: both; text-align: center;"><span style="font-family: arial; font-size: medium;"><br /></span></div><p></p><p><span style="background-color: white; font-family: arial;"><a href="https://www.eventbrite.co.uk/e/6th-adam-bojelian-memorial-talk-by-dr-karen-horridge-tickets-127873532177" target="_blank"><span style="font-size: medium;">https://www.eventbrite.co.uk/e/6th-adam-bojelian-memorial-talk-by-dr-karen-horridge-tickets-127873532177</span></a></span></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-68506717052816913672020-10-06T09:40:00.002+01:002020-10-06T09:40:53.320+01:00<h1 style="text-align: left;"><span style="font-family: arial;"><span style="font-size: x-large;"><span> </span><span> </span><span> </span><span> </span><span> </span><b>SAVE THE DATE</b></span><b> </b></span></h1><p><span style="font-family: arial;"><br /></span></p><h2 style="text-align: left;"><span style="font-family: arial;"><span> </span><span> </span><span> </span><span> </span><span> </span><span> </span><span> </span><span> </span><span> </span><span> <b><span style="font-size: large;">AdsTalk21</span></b></span></span></h2><div><span style="font-family: arial;"><span><b><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQabLGBJkIdhWh-bHSGx0ldfX2ip3f6wvpza7TSoiowbd9VLzl47zMtJ9qSWXJ3dpDQsErPj6q-3XjRzmRss6j96hIplW3pB2FG8p5bfZEf1AzLVl8pj_PKuNOcFBSqITVZsPdG4kwfa4/s320/IMG_0828.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="240" data-original-width="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQabLGBJkIdhWh-bHSGx0ldfX2ip3f6wvpza7TSoiowbd9VLzl47zMtJ9qSWXJ3dpDQsErPj6q-3XjRzmRss6j96hIplW3pB2FG8p5bfZEf1AzLVl8pj_PKuNOcFBSqITVZsPdG4kwfa4/s0/IMG_0828.JPG" /></a></div><br /><span style="font-size: large;"><br /></span></b></span></span></div><p style="text-align: left;"><span style="font-family: arial;"><span><b><span style="font-size: large;">We are delighted to announce that Dr. Karen Horridge</span></b></span></span></p><p style="text-align: left;"><span style="font-family: arial;"><span><b><span style="font-size: large;">will give the </span></b></span></span></p><p style="text-align: left;"><span style="font-family: arial;"><span><b><span style="font-size: large;"><span> </span>6th Adam Bojelian Memorial Talk </span></b></span></span><b style="font-family: arial;"><span style="font-size: large;">(#AdsTalk21)</span></b></p><p style="text-align: left;"><span style="font-family: arial;"><span><b><span style="font-size: large;"><span> </span>'Equal outcomes for all disabled children?'</span></b></span></span></p><p style="text-align: left;"><span style="font-family: arial;"><span><b><span style="font-size: large;"> at 12.30pm (GMT) on Wednesday 24th March 2021</span></b></span></span></p><p style="text-align: left;"><span style="font-family: arial;"><span><b><span style="color: red; font-size: large;">DUE TO COVID-19 this talk will be a webinar</span></b></span></span></p><p style="text-align: left;"><span style="font-family: arial;"><span><b><span style="font-size: large;">Dr. Karen Horridge, a paediatric consultant specialising in child disability, is hugely respected by disabled children, their families and her healthcare colleagues for her tireless work locally, regionally and nationally to improve the lives of disabled children and their families.</span></b></span></span></p><p style="text-align: left;"><span style="font-family: arial;"><span><b><span style="color: red; font-size: large;">More details and booking for AdsTalk21 will follow shortly and will be published both here and on twitter @4AdsThePoet</span></b></span></span></p><p style="text-align: left;"><span style="font-family: arial;"><span><b><span style="color: red; font-size: large;"><br /></span></b></span></span></p><p><span style="font-family: arial;"><span><b><span style="font-size: large;"><br /></span></b></span></span></p><p><span style="font-family: arial;"><span><b><span style="font-size: large;"><br /></span></b></span></span></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-79343787604046025652019-12-03T11:59:00.001+00:002020-10-06T09:42:33.294+01:00AdsTalk20 Bookings Are Now Open <div dir="ltr" style="text-align: left;" trbidi="on">
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<span face="Arial, Helvetica, sans-serif" style="font-size: x-large;"><a href="https://www.eventbrite.co.uk/e/5th-adam-bojelian-memorial-talk-adstalk20-tickets-82815235599?aff=ebdssbdestsearch" target="_blank">Click here</a> to book your free place for the</span><div>
<span face="Arial, Helvetica, sans-serif" style="font-size: x-large;">5th Adam Bojelian Memorial Talk</span></div><div><span face="Arial, Helvetica, sans-serif" style="font-size: x-large;"><br /></span></div><div><span style="color: red; font-size: x-large;">This event has been postponed due to COVID-19 and will be held as soon as possible. Further details will be announced both here and on twitter @4AdsthePoet</span></div>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-47056972038577451742019-05-10T09:10:00.001+01:002019-05-10T09:10:59.245+01:00<div dir="ltr" style="text-align: left;" trbidi="on">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCiJhyphenhyphenJJo1EhWzhE2q1ZqYyLax9TWUgiQf4fFJOjpr3d8yUAygX9OCNAv8jk-5qX9jXTfICbw1kqwjpbV3g2CJHcRchXJ84nvWoDpZkOCuN-KlwJMaYww4fAg6eFzU7aCi9YzL3c-5ySg/s1600/IMG_0828.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="240" data-original-width="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCiJhyphenhyphenJJo1EhWzhE2q1ZqYyLax9TWUgiQf4fFJOjpr3d8yUAygX9OCNAv8jk-5qX9jXTfICbw1kqwjpbV3g2CJHcRchXJ84nvWoDpZkOCuN-KlwJMaYww4fAg6eFzU7aCi9YzL3c-5ySg/s1600/IMG_0828.JPG" /></a></div>
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<br />
<br />
Adam’s blog ‘What Does Good Care Look Like’ closes this must listen to podcast from the Royal College of Paediatrics & Child Health on sepsis and children with complex health needs.<br />
<br />
Please listen to it all, but Adam features from 38 minutes<br />
<br />
<a href="https://soundcloud.com/user-317726731-508223034/episode-4-sepsis-the-child" target="_blank">https://soundcloud.com/user-317726731-508223034/episode-4-sepsis-the-child</a></div>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-82426544044950604432019-04-15T17:32:00.001+01:002019-04-15T17:32:10.955+01:00Dr Carmen Soto’s Adam Bojelian Memorial Talk <div dir="ltr" style="text-align: left;" trbidi="on">
<br />
<br />
<br />
Thank you Dr Carmen Soto for giving the 4th Adam Bojelian Memorial Talk<br />
on 29th March 2019<br />
<br />
‘Breaking the bubble - working in partnership with children and families’.<br />
<br />
Carmen’s Talk can be viewed here: <a href="https://www.pscp.tv/w/b4SmgjFlZGpuUnhCQlJqb2d8MW1uR2VPZ1hQbmJ4WK48ikNRANIqLSnnRZncx2fj1tRhWYU7oYRd6LTWGxFr?t=4s" target="_blank">LINK</a><br />
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Thank you Kath Evans for chairing; NHS Confederation, NHS Employers and Leeds Horizon for hosting & everyone who participated in person or on line.<br />
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<br /></div>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-62760687951732876902019-01-18T20:03:00.000+00:002019-02-28T08:24:01.498+00:00<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="direction: ltr; font-family: ".sfuidisplay"; font-size: 21pt; unicode-bidi: embed;">Booking is now open to hear @gourmetpenguin give #AdsTalk19</span></div>
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<span style="font-family: ".sfuidisplay"; font-size: 21pt;">“Breaking the bubble: working in partnership with children and families"</span></div>
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<span style="font-family: ".sfuidisplay"; font-size: 21pt;">Chaired by @KathEvans2 @HorizonLeeds 12-3pm 29/3</span></div>
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<span style="font-family: ".sfuidisplay"; font-size: 21pt;"><a href="https://www.eventbrite.co.uk/e/4th-adam-bojelian-memorial-talk-by-dr-carmen-soto-tickets-54718828489" target="_blank">CLICK HERE TO BOOK YOUR FREE PLACE</a></span></div>
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<span style="font-family: ".sfuidisplay"; font-size: 21pt;">All welcome </span></div>
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<span style="font-family: ".sfuidisplay"; font-size: 21pt;">Please spread the word among your colleagues & networks</span><br />
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-1024070444570873502018-04-08T11:33:00.002+01:002018-04-08T11:33:45.656+01:00Dr Emily Harrop gives 3rd Adam Bojelian Memorial Talk<div dir="ltr" style="text-align: left;" trbidi="on">
For the third year running, on 6th April 2018 folk travelled to Leeds from around the UK to attend the annual Adam Bojelian Memorial Talk.<br />
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This year’s talk was given by Dr. Emily Harrop, Paediatric Consultant, Helen & Douglas House Children’s Hospices and deputy Chair of the NICE End-of-life Care for infants, children and young people guidelines drafting committee. </div>
<div>
<br />
The programme for AdsTalk18 is available <a href="https://www.facebook.com/zoe.picton/posts/10216360711753325" target="_blank">HERE</a> , including information about Dr. Harrop<br />
<br />
You can watch the full talk, chaired by NHS England, Experience of Care Lead, Kath Evans<br />
<a href="https://www.pscp.tv/w/bZnlXjFlZGpuUnhCQlJqb2d8MXpxS1ZyQWtSdmxLQiRq_QZITz1m7Of69PVucHzMK1WTIIhfPzuQJ_oaO4tD" target="_blank">HERE</a></div>
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Please feel free to share the talk with colleagues and contacts and continue the discussion on Twitter using the hashtag #AdsTalk18<br />
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<br />
Following AdsTalk Dr Emily joined Twitter @EmilyHarrop9<br />
Kath Evans can be found at @KathEvans2<br />
and Adam’s legacy continues at @4AdsthePoet<br />
<br />
The 4th Adam Bojelian Memorial Talk will be held at AdsPlace, Horizon Leeds on Friday 29th March 2019 and we are delighted to announce it will be given by Dr. Carmen Soto (@gourmetpenguin)<br />
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Booking will open early December 2019 and will be advertised here, on Eventbrite and on Twitter (#AdsTalk19)</div>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-37367470187315402922017-11-10T17:50:00.004+00:002017-11-10T17:50:57.650+00:003rd Adam Bojelian Memorial Lecture Announced<br />
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<br />
<br />
The 3rd Adam Bojelian Memorial Lecture will be given by<br />
Dr Emily Harrop, Paediatric Palliative Care Consultant<br />
on Friday 6th April 2018 in Leeds<br />
<br />
Full details and booking can be found here<br />
<br />
<a href="https://www.eventbrite.co.uk/e/3rd-adam-bojelian-memorial-talk-tickets-37735698490" target="_blank">https://www.eventbrite.co.uk/e/3rd-adam-bojelian-memorial-talk-tickets-37735698490</a><br />
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Everyone is welcome.<br />
<br />
In addition to the opportunity to hear Dr Harrop talk, the event is an opportunity to celebrate Adam<br />
and the values he and those that supported him brought to the NHS<br />
<br />
The event is free but booking is essential.<br />
<br />
<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-20176763560442893362017-03-25T08:17:00.000+00:002017-03-25T08:17:54.693+00:00Hidden in Plain Sight - Healthcare in the 21st Century by Rob Webster <br />
<br />
<br />
<br />
NHS & other folk from around the UK gathered at Ads Place, Horizon Centre, Leeds, on 24th March 2017 (the second anniversary of Adam's death) to celebrate all Adam gave to the NHS and to hear Rob Webster give the 2nd Adam Bojelian Memorial Talk<br />
<br />
Hidden in Plain Sight - Healthcare in the 21st Century.<br />
<br />
Hundreds also joined by Periscope and Twitter.<br />
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You can view Rob's inspiring and informative talk here:-<br />
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<a href="https://www.periscope.tv/w/a6TMkzFlZGpuUnhCQlJqb2d8MVlxR29XckVSbGFHdoSAnJnDMRtzVuJupG2broNK79uzjz1a5VfhBUeqctEk" target="_blank">https://www.periscope.tv/w/a6TMkzFlZGpuUnhCQlJqb2d8MVlxR29XckVSbGFHdoSAnJnDMRtzVuJupG2broNK79uzjz1a5VfhBUeqctEk</a>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-64115918383697704912017-01-05T17:46:00.003+00:002017-01-05T17:46:47.793+00:00Second Annual Adam Bojelian Memorial Talk Announced<div class="g-group l-lg-mar-bot-6 l-md-mar-bot-4 l-pad-bot-6 " style="color: #45494e; font-family: 'Benton Sans', 'Helvetica Neue', Helvetica, Roboto, Arial, sans-serif; font-size: 0px; letter-spacing: 0px; margin: 0px 0px 30px; padding: 0px 0px 30px;">
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With thanks to NHS Employers, NHS Confederation and Horizon Leeds, the second Adam Bojelian Memorial Talk #AdsTalk17</div>
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"Hidden in plain sight - a new healthcare system for the 21st Century"</div>
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will be given by Adam's Hero & values based leader <b>Rob Webster @NHS_RobW</b>, CEO of South West Yorkshire Partnership NHS Foundation Trust @allofusinmind; visiting professor @leedsbeckett; hon fellow @rcgp, @theQNI, fellow @theRSAorg, leading West Yorks STP</div>
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Rob's talk will be chaired by Kath Evans @KathEvans2 Experience of Care Lead at NHS England and will be followed by a discussion of the issues raised and a short reception.</div>
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Everyone is warmly welcome.</div>
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Fri 24 March 2017</div>
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12:00 – 14:30 GM</div>
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LOCATION</h3>
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Horizon Leeds</div>
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2 Brewery Wharf </div>
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Kendell Street </div>
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Leeds </div>
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LS10 1JR</div>
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Click <a href="https://www.eventbrite.co.uk/e/adam-bojelian-memorial-talk-2017-tickets-29510035310?aff=eac2" target="_blank">HERE </a>to book your Free place</div>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-37060623016130787142016-05-17T19:31:00.001+01:002016-05-17T19:31:07.008+01:00Charlie Dog climbs mountains for Adam<div class="separator" style="clear: both; text-align: center;">
<iframe width="320" height="266" class="YOUTUBE-iframe-video" data-thumbnail-src="https://i.ytimg.com/vi/ZeItt64XM9A/0.jpg" src="https://www.youtube.com/embed/ZeItt64XM9A?feature=player_embedded" frameborder="0" allowfullscreen></iframe></div>
<br />
A short film on why Adam's dog Charlie Dog (together with Adam's mum, dad and a team of dedicated NHS staff who knew and loved Adam) are climbing 3 Welsh mountains for UK Sepsis Trust<br />
Please do watch, share & support him if you can.<br />
Thank you.<br />
<br />
Also thank you everyone who has already made a kind & generous donation. Much appreciated.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-85959974633816442762016-04-04T10:02:00.001+01:002016-04-04T10:02:09.942+01:00Together We Can Achieve Great Things <br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghRUOUWG4UdyObs32_KPnmXiQ7thkVb6H46WsmW7NTNRNNxxiwrvo-TXQF9D14BT6JdLmoAooqjj2G-oi6TC0iu5JQZXwdTsuZTfEcSuJwrwWF_9oQD2CupyxOM6FPJhZJ_kHxsWAm_LM/s1600/464456_3874811991707_1320925107_33617174_1199905324_o.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghRUOUWG4UdyObs32_KPnmXiQ7thkVb6H46WsmW7NTNRNNxxiwrvo-TXQF9D14BT6JdLmoAooqjj2G-oi6TC0iu5JQZXwdTsuZTfEcSuJwrwWF_9oQD2CupyxOM6FPJhZJ_kHxsWAm_LM/s320/464456_3874811991707_1320925107_33617174_1199905324_o.jpg" width="240" /></a></div>
<br />
<br />
<br />
<br />
<br />
The first Adam Bojelian Memorial Talk "<i>Together We Can Achieve Great Things</i>", by Kath Evans, (@KathEvans2), Children's Nurse and NHS England's Patient Experience Lead, and chaired by Gill Phillips (@WhoseShoes) was held on Thursday 24th March 2016 in Leeds, hosted by NHS Confederation & NHS Employers.<br />
<br />
You can watch Kath's talk by clicking on the link below:-<br />
<br />
<a href="http://youtu.be/UU5spQvvC2k" rel="nofollow" target="_blank">Adam Bojelian Memorial Talk 2016</a>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-35713273470775799492016-03-13T07:53:00.001+00:002016-03-13T07:53:22.690+00:00Memorial Talk <br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjelXEwnicV7WjjwrlT1TRuai_p3mx5rAx5FdDX4TULBDu5mHHsKAb5WDWZBg-SqDOSAgZdeLdPuwY9YxDJEx4wQRNoKAqUPuoJFBeJBxLA_ZxU_XBEkPFWVRcperLwwIb3AdF2T9c4ow4/s1600/312222_2361456598768_1320925107_32826915_5701224_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjelXEwnicV7WjjwrlT1TRuai_p3mx5rAx5FdDX4TULBDu5mHHsKAb5WDWZBg-SqDOSAgZdeLdPuwY9YxDJEx4wQRNoKAqUPuoJFBeJBxLA_ZxU_XBEkPFWVRcperLwwIb3AdF2T9c4ow4/s320/312222_2361456598768_1320925107_32826915_5701224_n.jpg" width="238" /></a></div>
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<br />
The first Adam Bojelian Memorial Talk by Kath Evans, (KathEvans2), Together We Can Achieve Great Things, Children's Nurse and NHS England's Patient Experience Lead, will be held on Thursday 24th March 2016, hosted by NHS Confederation & NHS Employers, in Leeds.<br />
<br />
Everyone interested in child health is warmly welcome, but please do book your ticket in advance:-<br />
<br />
<a href="https://www.eventbrite.co.uk/e/together-we-can-achieve-great-things-the-adam-bojelian-memorial-talk-2016-by-kath-evans-tickets-18470924031?aff=eac2" target="_blank">Click here to book</a>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-152852972152982982016-01-07T15:03:00.003+00:002016-01-07T15:03:57.229+00:00Yorkshire Evening Post feature Adam 6th January 2016<br />
<a href="http://www.yorkshirepost.co.uk/news/health/nhs-in-leeds-pays-tribute-to-inspirational-paralysed-yorkshire-poet-adam-bojelian-who-composed-pieces-by-blinking-1-7659463" target="_blank">http://www.yorkshirepost.co.uk/news/health/nhs-in-leeds-pays-tribute-to-inspirational-paralysed-yorkshire-poet-adam-bojelian-who-composed-pieces-by-blinking-1-7659463</a>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-45103100072971185622015-07-08T11:20:00.000+01:002015-07-08T11:21:02.926+01:00The Boy Who Kept On Receiving...At Adam's Memorial Service in Yorkshire in April, NHS Confederation CEO Rob Webster described<br />
Adam's poem Leadership as "the gift that keeps on giving".<br />
<br />
Yesterday it seemed Adam is the "boy who keeps on receiving" as he received yet another accolade, being named as one of Health Service Journal's inaugural Patient Leaders.<br />
<br />
Adam would have been awed to be included on the list alongside so many of the truly inspirational people he chatted with and followed on twitter, far to many to mention here, but all listed via the link below.<br />
<br />
He would have been proud that people had admired him enough to take the time and trouble to nominate him.<br />
<br />
Thank you Health Service Journal for recognising the important role patients play in the leadership of the NHS. Thank you in particular for recognising the leadership of several inspirational young people.<br />
<br />
Thank you all those who nominated Adam. No-one can be a leader unless others empower or allow you to be one, so thank you for doing this for Adam.<br />
<br />
Huge congratulations to all the other HSJ Patient Leaders. It was wonderful to meet so many of you at the reception. Thank you for all you do for all patients, families and indeed for making the NHS a better place for staff too. <br />
<br />
Thank you every patient, carer and family member who has put their head above the parapet when needed, whether or not you are on the list. <br />
<br />
We often hear of the courage staff need to put their head above the parapet and lead; of the barriers and attacks some will face for doing so. Believe you, me, for patient leaders the barriers are even higher.<br />
<br />
More than any award this one has made me appreciate just how awesome my wonderful Adam was. It is the award that he had to face more challenges and barriers than any others to achieve. Thankfully he has helped many hundreds of miles along that path by truly inspirational paid NHS leaders such as Rob Webster; Kath Evans; Kirstie Stottt and many, many more.<br />
<br />
Great leaders inspire and create great leaders. For all the barriers Adam faced in his life, he was privileged, largely through twitter, to meet many NHS staff who opened doors rather than put up barriers and allowed him to use his extensive knowledge and expertise of NHS services across the UK to help in a wee way to change the world for the better.<br />
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<span class="Apple-style-span" style="color: #333333; font-family: sourcesanspro-regular; font-size: 13px; line-height: 19px;"></span><br />
<h4 style="background-attachment: initial !important; background-clip: initial !important; background-color: rgb(221, 219, 220) !important; background-image: initial !important; background-origin: initial !important; background-position: initial initial !important; background-repeat: initial initial !important; border-bottom-color: rgb(204, 204, 204); border-bottom-style: dotted; border-bottom-width: 2px; color: #666666; font-family: 'Trebuchet MS', Verdana, Arial, Helvetica, sans-serif; font-size: 13px; font-weight: normal; margin-bottom: 17px; margin-left: 0px; margin-right: 8px; margin-top: 0px; padding-bottom: 4px; padding-left: 8px; padding-right: 8px; padding-top: 4px; text-transform: none !important; width: 388px;">
Adam Bojelian</h4>
<div style="font-size: 15px; margin-bottom: 17px; margin-left: 8px; margin-right: 8px; margin-top: 0px;">
<strong style="margin-left: 0px; margin-right: 0px;">Poet and patient leader</strong></div>
<div class="inline_image_left inline_image" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: dotted; border-bottom-width: 1px; clear: both; float: left; font-size: 0.846em; line-height: 16px; margin-bottom: 15px; margin-left: 8px; margin-right: 8px; margin-top: 0px; padding-bottom: 10px; width: 200px;">
<div class="picture" style="font-size: 15px; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">
<img alt="Bojelian_Adam_1MB" src="http://www.hsj.co.uk/Pictures/web/k/f/d/Bojelian_Adam_1M_200.jpg" style="border-bottom-style: none; border-bottom-width: 0px; border-color: initial; border-color: initial; border-left-style: none; border-left-width: 0px; border-right-style: none; border-right-width: 0px; border-top-style: none; border-top-width: 0px; display: block; margin-bottom: 3px; margin-left: 0px; margin-right: 0px;" /></div>
</div>
<div style="font-size: 15px; margin-bottom: 17px; margin-left: 8px; margin-right: 8px; margin-top: 0px;">
Adam is sadly no longer with us: the 15-year-old, who was born with cerebral palsy, died in March. But our judges were absolutely clear that the incredible influence this young man had over the course of his short life deserved recognition in this supplement.</div>
<div style="font-size: 15px; margin-bottom: 17px; margin-left: 8px; margin-right: 8px; margin-top: 0px;">
Adam was paralysed, but communicated through blinking. He wrote award-winning poems and latterly became a hugely popular presence on Twitter. In 2014, he was asked by NHS Confederation chief executive Rob Webster to pen a poem on healthcare leadership, the words of which have been widely shared.</div>
<div style="font-size: 15px; margin-bottom: 17px; margin-left: 8px; margin-right: 8px; margin-top: 0px;">
Said one of those nominating him: “Adam highlighted the need for NHS leaders to care and helped leaders to rethink their behaviours and attitudes to delivering services. His legacy lives on through improved care processes across health and social care.”</div>
<div style="font-size: 15px; margin-bottom: 17px; margin-left: 8px; margin-right: 8px; margin-top: 0px;">
<strong style="margin-left: 0px; margin-right: 0px;">Judges’ comments: “Adam is definitely on the list. He deserves the spotlight.”</strong></div>
<div style="font-size: 15px; margin-bottom: 17px; margin-left: 8px; margin-right: 8px; margin-top: 0px;">
<strong style="margin-left: 0px; margin-right: 0px;"><br /></strong></div>
<div style="font-size: 15px; margin-bottom: 17px; margin-left: 8px; margin-right: 8px; margin-top: 0px;">
<strong style="margin-left: 0px; margin-right: 0px;">Read the full list here:- http://www.hsj.co.uk/5087441.article#.VZz3XShOS-8</strong></div>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-76819358306910011982015-06-01T14:51:00.001+01:002015-06-01T14:51:23.265+01:00Adam RememberedSince Adam's tragic death on 24th March we have been overwhelmed by all the cards, letters and flowers we have received. As can been seen from the Celebration of Adam's Life held in Yorkshire in April (see film below) Adam touched thousands of lives.<br />
<br />
A number of people have written articles, blogs and reflections about Adam.<br />
<br />
Thank you everyone who has written to us; about Adam; attended a service in his memory and/or have donated to Sepsis UK in Adam's memory. Adam asked that donations be made to Sepsis UK in his memory. You can do so if you would like to <a href="https://www.justgiving.com/AdamBojelian15" target="_blank">HERE</a><br />
<br />
With thanks to the authors, here are some pieces written and tributes paid to Adam since his death:-<br />
<br />
<a href="http://www.bbc.co.uk/news/uk-scotland-edinburgh-east-fife-32052726" target="_blank">"But Above All He Raised Hope" by Pauline McLean BBC</a><br />
<br />
<a href="http://paulclarke.com/honestlyreal/2015/03/no-excuses-in-memory-of-adam-bojelian/" target="_blank">No Excuses In Memory of Adam Bojelian by Paul Clarke</a><br />
<br />
<a href="http://nhsrobwebster.com/" target="_blank">Leadership - My No Excuses Role Model by Rob Webster, NHS Confederation</a><br />
<br />
<a href="https://kirstiestott.wordpress.com/2015/05/17/take-me-as-i-am/" target="_blank">Take Me As I Am by Kirstie Stott</a><br />
<br />
<a href="http://younghealthparticipation.com/" target="_blank">Brave Adam - A Call To Arms by Young Health Participation</a><br />
<br />
<a href="https://paediacademiatrician.wordpress.com/2015/04/14/bounce/" target="_blank">Bounce by Dr Carmen Soto</a><br />
<br />
<a href="http://www.eduzineglobal.com/106/674/sleep-softly-our-wee-prince-of-poetry" target="_blank">Sleep Softly Our Wee Prince of Poetry by Gareth Jones, Eduzine Global</a><br />
<br />
<a href="http://theedge.nhsiq.nhs.uk/twitter-100/" target="_blank">The Edge, NHS Quality Improvement</a><br />
<br />
<a href="http://www.pickereurope.org/news/blog/patient-experience-network-part-2-organisational-highlights-so-far-and-the-future/" target="_blank">"My organisation's highlight" by Ruth Evans Patient Experience Network</a><br />
<br />
<a href="http://www.dailymail.co.uk/news/article-3011391/Paralysed-schoolboy-painstakingly-composed-poems-letter-letter-blinking-mother-wrote-dies-just-15.html" target="_blank">Daily Mail</a><br />
<br />
<a href="http://www.mirror.co.uk/news/uk-news/adam-bojelian-paralysed-schoolboy-who-5397085" target="_blank">The Mirror</a><br />
<br />
<a href="http://www.dailyrecord.co.uk/news/scottish-news/young-scot-hero-adam-bojelian-5422622" target="_blank">Daily Record</a><br />
<br />
<a href="http://www.yorkpress.co.uk/news/11884527.Talented_poet_Adam_Bojelian_dies_aged_15/?ref=mr" target="_blank">The York Press</a><br />
<br />
<a href="http://www.edinburghnews.scotsman.com/news/health/tributes-as-brave-blinking-poet-adam-dies-1-3728035" target="_blank">Edinburgh Evening News</a><br />
<br />
<a href="https://whoseshoes.wordpress.com/2015/04/20/the-rain-in-spain-matexp-abc-sherpa-union-whatever-next/" target="_blank">Whose Shoes</a><br />
<br />
<a href="http://www.broughtonspurtle.org.uk/sites/broughtonspurtle.org.uk/files/backissues/Spurtle%20239%20Final%20High%20Res.pdf" target="_blank">The Broughton Spurtle</a><br />
<br />
<a href="http://m.vtc.vn/538-546798/giao-duc/chang-trai-noi-tieng-sang-tac-tho-bang-mat-qua-doi-o-tuoi-15.htm" target="_blank">Vietnam News</a><br />
<br />
<a href="http://360kids.akaraisin.com/pledge/Participant/Home.aspx?seid=10110&mid=9&pid=2079419" target="_blank">Aidan Aird, Canada</a><br />
<br />
<a href="http://www.marica.bg/%D0%BF%D0%BE%D1%87%D0%B8%D0%BD%D0%B0-%D0%B4%D0%B5%D1%82%D0%B5%D1%82%D0%BE-%D0%BA%D0%BE%D0%B5%D1%82%D0%BE-%D0%BF%D0%B8%D1%88%D0%B5%D1%88%D0%B5-%D1%81%D1%82%D0%B8%D1%85%D0%BE%D0%B2%D0%B5-%D1%81-%D0%BE%D1%87%D0%B8-news384819.html" target="_blank">Russia</a><br />
<br />
<a href="http://newsjs.com/us/social-media-tributes-pour-in-for-saudi-hero-who-thwarted-isis-attack/?q=Bojelian&x=0&y=0" target="_blank">USA</a><br />
<br />
<br />
<br />
<br />
NB: Several of the newspapers say Adam became paralysed at 10 months old. This is not true, we are unsure where this information came from. We think it was published by one paper in error and then copied by others. Adam did however have very limited physical movement due to his cerebral palsy.Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-7110988489552455561.post-5400430085987152782015-05-12T07:13:00.000+01:002015-05-12T07:13:00.713+01:00<div class="separator" style="clear: both; text-align: center;">
<iframe width="320" height="266" class="YOUTUBE-iframe-video" data-thumbnail-src="https://i.ytimg.com/vi/ewee5hjFfqI/0.jpg" src="https://www.youtube.com/embed/ewee5hjFfqI?feature=player_embedded" frameborder="0" allowfullscreen></iframe></div>
<br />
A Celebration of Adam's Life in words, music and prayer was held on Saturday 11th April 2015<br />
at St. Mary's Church, Tadcaster, North Yorkshire, UK.<br />
<br />
On a beautiful spring days family and friends gathered from around the UK and further afield to hear recollections of Adam and to hear Adam's words read and music played beautifully by his family and friends. Thank you to everyone who came and everyone who took part. Thank you also to Sugi and Mark for making the beautiful film (available above) of the event.<br />
<br />
<br />
<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-51769182268228526892015-05-07T11:26:00.000+01:002015-05-07T11:26:29.617+01:00A Gift From Adam<div class="separator" style="clear: both; text-align: center;">
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span lang="EN-US" style="font-family: "Times New Roman";">This poem was
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><u><span lang="EN-US" style="font-family: "Times New Roman"; font-size: 14.0pt;">WINTER
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<br /></div>
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span lang="EN-US" style="font-family: "Times New Roman"; font-size: 14.0pt;">It
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span lang="EN-US" style="font-family: "Times New Roman"; font-size: 14.0pt;">A
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span lang="EN-US" style="font-family: "Times New Roman"; font-size: 14.0pt;">Landing
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<br /></div>
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span lang="EN-US" style="font-family: "Times New Roman"; font-size: 14.0pt;">Shivering
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span lang="EN-US" style="font-family: "Times New Roman"; font-size: 14.0pt;">Fingers
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span lang="EN-US" style="font-family: "Times New Roman"; font-size: 14.0pt;">Nose
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<br /></div>
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span lang="EN-US" style="font-family: "Times New Roman"; font-size: 14.0pt;">Hats
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span lang="EN-US" style="font-family: "Times New Roman"; font-size: 14.0pt;">Collars
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span lang="EN-US" style="font-family: "Times New Roman"; font-size: 14.0pt;">People
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span lang="EN-US" style="font-family: "Times New Roman"; font-size: 14.0pt;">Thick
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<br /></div>
<div class="MsoNormal">
<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span lang="EN-US" style="font-family: "Times New Roman"; font-size: 14.0pt;">Winter
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span lang="EN-US" style="font-family: "Times New Roman"; font-size: 14.0pt;">A
colourless time<o:p></o:p></span></i></b></div>
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span lang="EN-US" style="font-family: "Times New Roman"; font-size: 14.0pt;">Windows
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span lang="EN-US" style="font-family: "Times New Roman"; font-size: 14.0pt;">Fields
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span lang="EN-US" style="font-family: "Times New Roman"; font-size: 14.0pt;">All
is white<o:p></o:p></span></i></b></div>
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<br /></div>
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span lang="EN-US" style="font-family: "Times New Roman"; font-size: 14.0pt;">©
Adam Bojelian<o:p></o:p></span></i></b></div>
<!--EndFragment-->Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-39630847888662458372015-04-13T08:18:00.002+01:002015-04-13T08:18:19.144+01:00A Lullaby For A Royal Baby<br />
A LULLABY FOR A ROYAL BABY<br />
Lyrics by Adam Bojelian<br />
Music by Wolfgang Amadeus Mozart<br />
(Minute & Trio in G (K1)<br />
<br />
Sleep softly my princess*,<br />
Sleep softly my princess,<br />
As you do, all night through,<br />
I’ll be there,<br />
And the angels too.<br />
<br />
Sleep softly my princess,<br />
Sleep softly my princess,<br />
As you do, all night through,<br />
I’ll be there,<br />
And the angels too.<br />
<br />
Sleep softly my princess,<br />
Sleep softly my princess,<br />
As you do, all night through,<br />
I’ll be there,<br />
And the angels too.<br />
<br />
Sleep softly my princess,<br />
Sleep softly my princess,<br />
As you do, all night through,<br />
I’ll be there,<br />
And the angels too.<br />
<br />
Play boldly my princess,<br />
Play boldly my princess,<br />
With a tickle,<br />
With a giggle,<br />
Play boldly my princess.<br />
Play boldly my princess,<br />
Play boldly my princess,<br />
With a tickle,<br />
With a giggle,<br />
Play boldly my princess.<br />
<br />
Play boldly my princess,<br />
Play boldly my princess,<br />
With a tickle,<br />
With a giggle,<br />
Play boldly my princess.<br />
<br />
Play boldly my princess,<br />
Play boldly my princess,<br />
With a tickle,<br />
With a giggle,<br />
Play boldly my princess.<br />
<br />
Sleep softly my princess,<br />
Sleep softly my princess,<br />
As you do, all night through,<br />
I’ll be there,<br />
And the angels too.<br />
<br />
Sleep softly my princess,<br />
Sleep softly my princess,<br />
As you do, all night through,<br />
I’ll be there,<br />
And the angels too.<br />
<br />
If the baby is a boy the words wee prince should replace the word princess<br />
© Adam Bojelian 2013<br />
<br />
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-8891783273316852872015-03-29T22:51:00.001+01:002015-04-03T06:50:58.189+01:00A CELEBRATION OF THE LIFE OF ADAM BOJELIAN <span style="background-color: rgba(255, 255, 255, 0);">Thank you everyone who has sent messages of condolences following Adam's tragic death from sepsis. Your messages and all the wonderful tributes these have been a great comfort to us all.<br /><br />We hope you can join us to celebrate Adam's life.<br /><br />If you are able to attend, please click here to confirm attendance:-<br /><a href="https://www.eventbrite.co.uk/e/a-celebration-of-the-life-of-adam-alexander-bojelian-tickets-16370449455" x-apple-data-detectors-result="0" x-apple-data-detectors-type="link" x-apple-data-detectors="true">https://www.eventbrite.co.uk/e/a-celebration-of-the-life-of-adam-alexander-bojelian-tickets-16370449455</a><br /><br />Please do share this invitation with anyone you feel may like to attend.<br /><br />Many thanks<br /><br />Zoe & Paul Bojelian<br /><br /><br /><img border="0" id="E948AF80-137F-43CC-8933-2D43A86B8644" src="cid:E948AF80-137F-43CC-8933-2D43A86B8644" style="padding: 0px 1px 1px 0px;" width="654" /><br /><br /><br />Sent from my iPad</span>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-13914800790282251072015-02-08T16:41:00.000+00:002015-02-08T16:41:00.990+00:00Why Disability Matters Matters<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;">I am honoured that the RCPCH asked me to write a Rap for the launch of Disability Matters on 5th February 2015.</span><br />
<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;"><br /></span>
<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;">Unfortunately I was too poorly to be there, but I did manage to read it using my iPad voice from my sick bed.</span><br />
<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;"><br /></span>
<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;">I also wrote some music to go with it using garage band.</span><br />
<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;"><br /></span>
<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;">You can hear it here:- <a href="http://www.eduzineglobal.com/88/648/why-ads-poetic-rap-matters" target="_blank">http://www.eduzineglobal.com/88/648/why-ads-poetic-rap-matters</a></span><br />
<span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); font-family: Helvetica; font-size: 15px; line-height: 19px; white-space: nowrap;"><br /></span>
<span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); font-family: Helvetica; font-size: 15px; line-height: 19px; white-space: nowrap;">Please do spread the word about #DisabilityMatters and sign up to it.</span><br />
<span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); font-family: Helvetica; font-size: 15px; line-height: 19px; white-space: nowrap;"><br /></span>
<span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); font-family: Helvetica; font-size: 15px; line-height: 19px; white-space: nowrap;">If every body who works with children and young people completed the modules the world would be </span><br />
<span style="font-family: Helvetica;"><span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); font-size: 15px; line-height: 19px; white-space: nowrap;">a better place. </span></span><br />
<span style="font-family: Helvetica;"><span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); font-size: 15px; line-height: 19px; white-space: nowrap;"><br /></span></span>
<span style="font-family: Helvetica;"><span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); font-size: 15px; line-height: 19px; white-space: nowrap;">You can find #DisabilityMatters here:-</span></span><br />
<span style="font-family: Helvetica;"><span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); font-size: 15px; line-height: 19px; white-space: nowrap;"><br /></span></span>
<span style="font-family: Helvetica;"><span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); font-size: 15px; line-height: 19px; white-space: nowrap;"><a href="http://www.disabilitymatters.org.uk/" target="_blank">www.disabilitymatters.org.uk</a></span></span><br />
<span style="font-family: Helvetica;"><span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); font-size: 15px; line-height: 19px; white-space: nowrap;"><br /></span></span>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7110988489552455561.post-71855843473160092152014-12-22T16:05:00.002+00:002014-12-22T16:05:50.056+00:00It's A Wonderful NHS!<span style="font-family: Verdana, sans-serif; font-size: large;">Thank you everyone who organised, contributed and came to the best party ever.</span><div>
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<span style="font-family: Verdana, sans-serif; font-size: large;">The NHS at it very best.</span></div>
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<span style="font-family: Verdana, sans-serif; font-size: large;">Rob Webster tells more here:-</span></div>
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<a href="http://nhsrobwebster.com/2014/12/22/its-a-wonderful-life/">http://nhsrobwebster.com/2014/12/22/its-a-wonderful-life/</a></div>
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<span style="font-family: Verdana, sans-serif; font-size: large;">And here is a link to the NHS Employers page where you can see all the fun:-</span></div>
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<a href="http://vimeo.com/nhsemployers/videos">http://vimeo.com/nhsemployers/videos</a></div>
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<span style="font-family: Verdana, sans-serif; font-size: large;">We are so lucky in the UK to have an NHS full of so many stars!</span></div>
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<span style="font-family: Verdana, sans-serif; font-size: large;">Thank you for making my Christmas the best ever!</span></div>
Unknownnoreply@blogger.com0