Tuesday, 17 May 2016

Charlie Dog climbs mountains for Adam


A short film on why Adam's dog Charlie Dog (together with Adam's mum, dad and a team of dedicated NHS staff who knew and loved Adam) are climbing 3 Welsh mountains for UK Sepsis Trust
Please do watch, share & support him if you can.
Thank you.

Also thank you everyone who has already made a kind & generous donation. Much appreciated.

Monday, 4 April 2016

Together We Can Achieve Great Things







The first Adam Bojelian Memorial Talk "Together We Can Achieve Great Things", by Kath Evans, (@KathEvans2), Children's Nurse and NHS England's Patient Experience Lead, and chaired by Gill Phillips (@WhoseShoes) was held on Thursday 24th March 2016 in Leeds, hosted by NHS Confederation & NHS Employers.

You can watch Kath's talk by clicking on the link below:-

 Adam Bojelian Memorial Talk 2016

Sunday, 13 March 2016

Memorial Talk




The first Adam Bojelian Memorial Talk by Kath Evans, (KathEvans2), Together We Can Achieve Great Things, Children's Nurse and NHS England's Patient Experience Lead, will be held on Thursday 24th March 2016, hosted by NHS Confederation & NHS Employers, in Leeds.

Everyone interested in child health is warmly welcome, but please do book your ticket in advance:-

Click here to book

Wednesday, 8 July 2015

The Boy Who Kept On Receiving...

At Adam's Memorial Service in Yorkshire in April, NHS Confederation CEO Rob Webster described
Adam's poem Leadership as "the gift that keeps on giving".

Yesterday it seemed Adam is the "boy who keeps on receiving" as he received yet another accolade, being named as one of Health Service Journal's inaugural Patient Leaders.

Adam would have been awed to be included on the list alongside so many of the truly inspirational people he chatted with and followed on twitter, far to many to mention here, but all listed via the link below.

He would have been proud that people had admired him enough to take the time and trouble to nominate him.

Thank you Health Service Journal for recognising the important role patients play in the leadership of the NHS.  Thank you in particular for recognising the leadership of several inspirational young people.

Thank you all those who nominated Adam. No-one can be a leader unless others empower or allow you to be one, so thank you for doing this for Adam.

Huge congratulations to all the other HSJ Patient Leaders. It was wonderful to meet so many of you at the reception.  Thank you for all you do for all patients, families and indeed for making the NHS a better place for staff too.

Thank you every patient, carer and family member who has put their head above the parapet when needed, whether or not you are on the list.

We often hear of the courage staff need to put their head above the parapet and lead; of the barriers and attacks some will face for doing so.  Believe you, me, for patient leaders the barriers are even higher.

More than any award this one has made me appreciate just how awesome my wonderful Adam was.  It is the award that he had to face more challenges and barriers than any others to achieve.  Thankfully he has helped many hundreds of miles along that path by truly inspirational paid NHS leaders such as Rob Webster; Kath Evans; Kirstie Stottt and many, many more.

Great leaders inspire and create great leaders.  For all the barriers Adam faced in his life, he was privileged, largely through twitter, to meet many NHS staff who opened doors rather than put up barriers and allowed him to use his extensive knowledge and expertise of NHS services across the UK to help in a wee way to change the world for the better.


Adam Bojelian

Poet and patient leader
Bojelian_Adam_1MB
Adam is sadly no longer with us: the 15-year-old, who was born with cerebral palsy, died in March. But our judges were absolutely clear that the incredible influence this young man had over the course of his short life deserved recognition in this supplement.
Adam was paralysed, but communicated through blinking. He wrote award-winning poems and latterly became a hugely popular presence on Twitter. In 2014, he was asked by NHS Confederation chief executive Rob Webster to pen a poem on healthcare leadership, the words of which have been widely shared.
Said one of those nominating him: “Adam highlighted the need for NHS leaders to care and helped leaders to rethink their behaviours and attitudes to delivering services. His legacy lives on through improved care processes across health and social care.”
Judges’ comments: “Adam is definitely on the list. He deserves the spotlight.”

Read the full list here:- http://www.hsj.co.uk/5087441.article#.VZz3XShOS-8

Monday, 1 June 2015

Adam Remembered

Since Adam's tragic death on 24th March we have been overwhelmed by all the cards, letters and flowers we have received.  As can been seen from the Celebration of Adam's Life held in Yorkshire in April (see film below) Adam touched thousands of lives.

A number of people have written articles, blogs and reflections about Adam.

Thank you everyone who has written to us; about Adam; attended a service in his memory and/or have donated to Sepsis UK in Adam's memory.  Adam asked that donations be made to Sepsis UK in his memory. You can do so if you would like to HERE

With thanks to the authors, here are some pieces written and tributes paid to Adam since his death:-

"But Above All He Raised Hope" by Pauline McLean BBC

No Excuses In Memory of Adam Bojelian by Paul Clarke

Leadership - My No Excuses Role Model by Rob Webster, NHS Confederation

Take Me As I Am by Kirstie Stott

Brave Adam - A Call To Arms by Young Health Participation

Bounce by Dr Carmen Soto

Sleep Softly Our Wee Prince of Poetry by Gareth Jones, Eduzine Global

The Edge, NHS Quality Improvement

"My organisation's highlight" by Ruth Evans Patient Experience Network

Daily Mail

The Mirror

Daily Record

The York Press

Edinburgh Evening News

Whose Shoes

The Broughton Spurtle

Vietnam News

Aidan Aird, Canada

Russia

USA




NB: Several of the newspapers say Adam became paralysed at 10 months old.  This is not true, we are unsure where this information came from. We think it was published by one paper in error and then copied by others.  Adam did however have very limited physical movement due to his cerebral palsy.

Tuesday, 12 May 2015


A Celebration of Adam's Life in words, music and prayer was held on Saturday 11th April 2015
at St. Mary's Church, Tadcaster, North Yorkshire, UK.

On a beautiful spring days family and friends gathered from around the UK and further afield to hear recollections of Adam and to hear Adam's words read and music played beautifully by his family and friends. Thank you to everyone who came and everyone who took part. Thank you also to Sugi and Mark for making the beautiful film (available above) of the event.



Thursday, 7 May 2015

A Gift From Adam






This poem was found amongst Adam’s school work after his death.  From the handwriting of the assistant it must have been written in 2010/11.

It is clearly unfinished, for example, Adam had not added punctuation, apart from two commas, which he tended to add last to his poems.  It is a wonderful gift to find from Adam.

WINTER

Winter is
Frost on my window pane like an artist’s stroke
Shimmering it sparkles with the changing light
Icicles clinging from the roofs and doorways
People slipping and sliding balancing precariously
Along winding streets and lanes

It is a winter tapestry
Snow covered hills
A frozen lake that a gliding swan swims on

It is a glittering star
A silver rocket
Landing on the moon

Shivering freezing sneezing
Fingers and toes
Face red
Nose running

Hats on heads
Collars turned up
People wrapped up
Thick socks, wellies, furry boots

Winter is a frosty landscape
A colourless time
Windows frosted over
Fields covered in snow
All is white

© Adam Bojelian

Monday, 13 April 2015

A Lullaby For A Royal Baby


A LULLABY FOR A ROYAL BABY
Lyrics by Adam Bojelian
Music by Wolfgang Amadeus Mozart
(Minute & Trio in G (K1)

Sleep softly my princess*,
Sleep softly my princess,
As you do, all night through,
I’ll be there,
And the angels too.

Sleep softly my princess,
Sleep softly my princess,
As you do, all night through,
I’ll be there,
And the angels too.

Sleep softly my princess,
Sleep softly my princess,
As you do, all night through,
I’ll be there,
And the angels too.

Sleep softly my princess,
Sleep softly my princess,
As you do, all night through,
I’ll be there,
And the angels too.

Play boldly my princess,
Play boldly my princess,
With a tickle,
With a giggle,
Play boldly my princess.
Play boldly my princess,
Play boldly my princess,
With a tickle,
With a giggle,
Play boldly my princess.

Play boldly my princess,
Play boldly my princess,
With a tickle,
With a giggle,
Play boldly my princess.

Play boldly my princess,
Play boldly my princess,
With a tickle,
With a giggle,
Play boldly my princess.

Sleep softly my princess,
Sleep softly my princess,
As you do, all night through,
I’ll be there,
And the angels too.

Sleep softly my princess,
Sleep softly my princess,
As you do, all night through,
I’ll be there,
And the angels too.

If the baby is a boy the words wee prince should replace the word princess
© Adam Bojelian 2013

Sunday, 29 March 2015

A CELEBRATION OF THE LIFE OF ADAM BOJELIAN

Thank you everyone who has sent messages of condolences following Adam's tragic death from sepsis. Your messages and all the wonderful tributes these have been a great comfort to us all.

We hope you can join us to celebrate Adam's life.

If you are able to attend, please click here to confirm attendance:-
https://www.eventbrite.co.uk/e/a-celebration-of-the-life-of-adam-alexander-bojelian-tickets-16370449455

Please do share this invitation with anyone you feel may like to attend.

Many thanks

Zoe & Paul Bojelian





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