Thursday 10 November 2022

#AdsTalk23 Professor Dr Ruth Norway will give the 2023 Adam Bojelian Memorial Talk


Professor Ruth Northway will give the 2023 Adam Bojelian Memorial Talk 'Equality, diversity and inclusion in healthcare; moving beyond the policy to embedding in practice', chaired by Rob Webster.

We will be returning to a face-to-face event in 2023 at AdsPlace, Horizon Centre Leeds.

Anyone interested in health and social care and disability is warmly welcome to this free event. As always with AdsTalks, there will be plentiful opportunity for all delegates, who wish to do so, to discuss the issues raised. Admission will be by ticket only.


12.00-12.30: Opportunity for delegates to network. A free sandwich lunch will be provided by the Adam Bojelian Foundation CIC.

12.30-13.30: Talk by Professor Ruth Northway.

13.30-14.30: Discussion of issues raised chaired by Rob Webster.

Full details and the link to book HERE#AdsTalk23

More information

Dr Ruth Northway OBE is Professor of Learning Disabilities at the Faculty of Life Science and Education, University of South Wales, a post she has held for twenty years. A learning disability nurse by background she has worked in a range of residential and community settings before moving to work in nurse education. Her key areas of interest relate to the health and well-being of people with learning disabilities, safeguarding and the use of participatory/inclusive research approaches.

You can follow Ruth on Twitter @NorthwayRuth

Rob Webster CBE is Chief Executive for the West Yorkshire and Harrogate Health and Care Partnership (Intergrated Care System). This sees him bring together West Yorkshire and Harrogate health and care leaders, organisations and communities to deliver ambitious plans for improved health, care and finances for 2.7 million people. Rob is an active member of the NHS Assembly and contributes to a number of national programmes.

Rob has worked in healthcare since 1990 taking on national leadership roles in the Department of Health on policy, transformation and delivery. He has been a director for both the Prime Minister’s Delivery Unit in the Cabinet Office and a national public/private partnership. He was Chief Executive of the NHS Confederation between 2014 and 2016, having proven to be a successful Chief Executive in the NHS since 2007, running a number of commissioning organisations and providers of NHS services. He has chaired formal cancer, primary care, community trust and learning disability networks.

Rob is defined by a values based approach to leadership. He is a visiting Professor at Leeds Beckett University and was proud to be made a Fellow of the Queen’s Nursing Institute in 2014. In May 2016, Rob became an Honorary Fellow of the Royal College of General Practitioners. In 2020 he was made a Commander of the Order of the British Empire (CBE).You can follow Rob on Twitter @NHS_RobW

About Adam Bojelian

Adam Bojelian was born in Hampshire, England in 2000 and died in Yorkshire from sepsis in 2015. He lived most of his life in Edinburgh, Scotland.

Adam acquired cerebral palsy at birth and went on to develop multiple health needs. Despite this, until his last months Adam lived a full and active life. He was educationally very bright, being top of the class in all subjects in mainstream school.

Aged just ten years old, Adam won the first of many national and international awards for writing, a Brit Writers award, followed very quickly by a gold Blue Peter badge. Adam gained international recognition and worldwide media coverage when at Christmas 2012, his poem Christmas Gibbons, set to music by a Hollywood musician, reached number 2 in an iTunes Chart.

As Adam’s fame spread, he began using his voice to tell the world about his experiences living with cerebral palsy, especially the challenges he faced attending school, due to lack of support and not being listened to by some health professionals, despite his immense knowledge and experience of his own health needs. Adam blogged about his experiences, he was interviewed by the BBC and others and was also invited to give a talk to Members of the Scottish Parliament, which he did using his iPad voice.

As he entered his teenage years, Adam was increasingly commissioned by national organisations to write for them. Rob Webster, the then CEO of the NHS Confederation commissioned Adam to write a poem on leadership, which was read at that organisation’s annual conference and is now widely used by the NHS and other bodies. The Royal College of Paediatrics and Child Health asked Adam to write a rap to celebrate the launch of Disability Matters, a national training resource, to which Adam contributed, for everyone working with children and young people, to help challenge disability discrimination, particularly in healthcare. Adam was also commissioned by a national charity to write a lullaby to celebrate the birth of Prince George. Adam loved music and set his poem to a piece by his favourite classical composer Mozart.

Adam became a much loved voice on twitter, enjoyed by thousands. He was well known for his ability to celebrate the good, whilst highlighting in a positive way where improvement is needed. In 2012 The Scotsman newspaper named Adam as one of ’40 people who put Edinburgh on the map in 2012′ and in 2013 Adam was listed on The Independent on Sunday’s ‘Happy List’, identifying him as one of the people who brought the most happiness to the UK that year.

Since his death, Adam’s legacy lives on. National guidance from bodies including the National Institute for Health and Care Excellence (NICE) have dedicated national guidance to Adam. Several PhD scholars have dedicated their PhD thesis to Adam and academic books and book chapters have likewise been dedicated to him, recognising the huge contribution his blogs, talks and insights contributed to our understanding of the experiences of children living with disability, especially in healthcare.

The Adam Bojelian Foundation CIC(AdsFoundation), a not-for-profit organisation providing education and training in healthcare law and a weekly free advice clinic, builds on the work Adam started, and his determination to improve the well-being of all patients, families and staff. You can follow AdsFoundation director Dr Zoe Picton-Howell (Adam's mum) on Twitter @PictonZoe and find its website at .

Wednesday 11 May 2022

The Adam Bojelian Foundation CIC

 Adam's family founded the Adam Bojelian Foundation CIC a community interest company in 2020.

The Foundation is a key part of Adam's legacy.

You can link to the Foundation where you will find all the Learn With Dr Dog Films, links to all the Adam Bojelian Memorial Talks and a host of resources on healthcare law, ethics and communication from this link:

The Adam Bojelian Foundation

All Adam's works will continue to be available on this website.

Sunday 23 January 2022

Booking Open for AdsTalk22 with Dr Peter Sidebotham

 Booking is now open for #AdsTalk22 with Dr Peter Sidebotham, on-line on 15th March 2022.

Click on this link for full details and to book your free place.

Thursday 5 November 2020

Dr Karen Horridge to give 6th Adam Bojelian Memorial Talk 'Equal Outcomes for all disabled children?'


Booking is now open for the 6th Adam Bojelian Memorial Talk #AdsTalk21 by Dr Karen Horridge (@KarenHorridge)

Equal Outcomes for all Disabled Children?

Chaired by Rob Webster (@NHS_RobW)

Due to Covid-19 #AdsTalk21 will be on-line but still with plenty of opportunity to join in the discussion.

Please spread the word, all welcome.

Click here for more details and to book your place:

Tuesday 6 October 2020

                    SAVE THE DATE 


We are delighted to announce that Dr. Karen Horridge

will give the 

    6th Adam Bojelian Memorial Talk (#AdsTalk21)

    'Equal outcomes for all disabled children?'

 at 12.30pm (GMT) on Wednesday 24th March 2021

DUE TO COVID-19 this talk will be a webinar

Dr. Karen Horridge, a paediatric consultant specialising in child disability, is hugely respected by disabled children, their families and her healthcare colleagues for her tireless work locally, regionally and nationally to improve the lives of disabled children and their families.

More details and booking for AdsTalk21 will follow shortly and will be published both here and on twitter @4AdsThePoet

Tuesday 3 December 2019

AdsTalk20 Bookings Are Now Open

Click here to book your free place for the
5th Adam Bojelian Memorial Talk

This event has been postponed due to COVID-19 and will be held as soon as possible. Further details will be announced both here and on twitter @4AdsthePoet

Friday 10 May 2019

Adam’s blog ‘What Does Good Care Look Like’ closes this must listen to podcast from the Royal College of Paediatrics & Child Health on sepsis and children with complex health needs.

Please listen to it all, but Adam features from 38 minutes

Monday 15 April 2019

Dr Carmen Soto’s Adam Bojelian Memorial Talk

Thank you Dr Carmen Soto for giving the 4th Adam Bojelian Memorial Talk
on 29th March 2019

‘Breaking the bubble - working in partnership with children and families’.

Carmen’s Talk can be viewed here: LINK

Thank you Kath Evans for chairing; NHS Confederation, NHS Employers and Leeds Horizon for hosting & everyone who participated in person or on line.

Friday 18 January 2019

Booking is now open to hear @gourmetpenguin give #AdsTalk19

“Breaking the bubble: working in partnership with children and families"

Chaired by @KathEvans2 @HorizonLeeds 12-3pm 29/3

All welcome  

Please spread the word among your colleagues & networks

Sunday 8 April 2018

Dr Emily Harrop gives 3rd Adam Bojelian Memorial Talk

For the third year running, on 6th April 2018 folk travelled to Leeds from around the UK to attend the annual Adam Bojelian Memorial Talk.

This year’s talk was given by Dr. Emily Harrop, Paediatric Consultant, Helen & Douglas House Children’s Hospices and deputy Chair of the NICE End-of-life Care for infants, children and young people guidelines drafting committee. 

The programme for AdsTalk18 is available HERE , including information about Dr. Harrop

You can watch the full talk, chaired by NHS England, Experience of Care Lead, Kath Evans

Please feel free to share the talk with colleagues and contacts and continue the discussion on Twitter using the hashtag #AdsTalk18

Following AdsTalk Dr Emily joined Twitter @EmilyHarrop9
Kath Evans can be found at @KathEvans2
and Adam’s legacy continues at @4AdsthePoet

The 4th Adam Bojelian Memorial Talk will be held at AdsPlace, Horizon Leeds on Friday 29th March 2019 and we are delighted to announce it will be given by Dr. Carmen Soto (@gourmetpenguin)

Booking will open early December 2019 and will be advertised here, on Eventbrite and on Twitter (#AdsTalk19)