My #FUNFUND for LEEDS CHILDREN'S HOSPITAL APPEAL #WeAllMatter!

If you have visited my blog or follow me on twitter @AdsthePoet you will know one of my hobbies is FUNdraising.  I like to put the FUN into FUNdraising.

At the moment I am fundraising for Leeds Children's Hospital Appeal, the hospital I have been in since September 2013. That is a long time to be in hospital, especially if like me you are in isolation.  I want to thank the staff at Leeds for the wonderful care I have received here.

The nurses, doctors and all the staff are brilliant, but I do miss out on FUN!  I miss going to school, I miss doing fun things and I miss seeing my friends and wider family,  Luckily my TWITTER friends are really good at keeping me happy and connected to the world. I had a brilliant twitter birthday party, but more FUN would make my life so much better.  I want to flourish not just survive!

I am sure there are many other boys and girls in my hospital who would also like more FUN. The Leeds Children's Hospital Appeal does a great job, but to me it seems that often the same hospitals and or the same wards always seem to benefit from charities and the same hospitals and wards always seem to miss out, for example when celebrities are fundraising or visiting.  To me that seems wrong.   It is brilliant that the children in those hospitals and on those wards get such good facilities and FUN, they should, but I don't understand why ALL children and young people in all hospitals and in all wards shouldn't share in the FUN, also have fun visitors and lots of entertainment too. #WeAllMatter! 

So I want to CHANGE THIS, starting with my ward and my hospital.  I want ALL children and young people in Leeds Children's Hospital, but most especially those who have long stays & who are very poorly to have lots of fun, entertainment and visitors.  It shouldn't depend on your medical condition or your geographical location whether or not you have FUN when you are in hospital. Fun is too important for that.  In particular it seems WRONG that it is the children who are often in the most and the the longest, with neuro-disability like me who are the ones who are missing out most! WHY? #WeAllMatter!

If you would like to help create a #FUNFUND so that ALL the children and young people in Leeds Children's Hospital can have FUN, here are some things you can do:-

You can join in my #WorldCup2014 Sweepstake, raising funds for Leeds Children's Hospital Appeal.

You can see how to do that HERE

You can also sponsor my mum, who is running the Leeds 10K for Leeds Children Hospital Appeal HERE

Once I am out of hospital, with the help of my TWITTER friends I also want to organise a concert in Leeds to raise money for my #FUNFUND for Leeds Children's Hospital Appeal.  Do get in touch via twitter @AdsthePoet if you are able to help organise this concert in anyway.

Also once I am out of hospital CharlieDog is going to help me in lots of FUNdraising events, such as a dogolympics and a dog themed quiz.

I want to send a HUGE THANK YOU to my friends Eduzine Global and @Futureistex for supporting me by funding raising for Leeds Children's Hospital Appeal. You are awesome!

THANK YOU for all your support!  Lets ensure ALL children in EVERY hospital have the best life they can.

PLAY IS A RIGHT, NOT A LUXURY, AS THIS BRILLIANT FILM SHOWS:-

THANK YOU!

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#FUNFUND  #WeAllMatter!

A Lullaby For A Royal Prince

Earlier this year, during Children's Hospice Week, the Duchess of Cambridge visited Naomi House Children's Hospice in Hampshire.  I used to visit Naomi House when I was very wee.  Although that more than a decade ago, staff have kept in touch and like reading about my achievements.  Following the Royal visit I was contacted by the editor of Eduzine, the brilliant magazine that celebrates young people's achievements and who were covering the Duchess' visit.  They asked me to write a lullaby for the Royal Baby.

When I was a baby I loved listening to Mozart (I still do) so I chose a piece of music I thought would sound good as a lullaby and then I wrote my lyrics.  I had to include two alternatives, as I didn't know if the baby would be a boy or a girl.

You can read my lullaby and also all about the Duchess' visit to Naomi House in the latest edition of Eduzine:- http://www.eduzine.org/

The magazine has also published my short story Jamie and the Ceeabs as the first chapter of their never ending story......

If all this is not exciting enough, Urban Voices UK are now working with Eduzine to record my lullaby in various musical styles.  it will be released to raise money for brilliant charities working to improve the lives of children & young people.

Follow me @Adsthepoet @Eduzineinfo and @UrbanVoiceUkCom to keep up to date with the latest developments with my Royal Lullaby.

Doing My Bit!

I haven't had the best of years healthwise, infact I seem to be doing a tour of the UK's hospitals.

However, one thing that has kept me smiling, when I have been feeling poorly is my fundraising.

I like fundraising, especially doing it in fun ways and especially when it raises money to help other boys and girls.  I also like to show people that I can help others just as much as other boys and girls can.

I have three fund raising projects on the go at the moment.  You may have read about my Trike Ride For Kindred.  I am delighted that following a really generous donation of £2,000 by a very kind man who had read about me, I have reached my target of £5,000.  Infact I have exceeded it as I have raised
£5,970.00.  I hope this will really help Kindred, who provide lots of help and support for families whose children have disabilities.

The weather and my health have both been so awful that I haven't yet been able to complete my mile ride on my Trike around the meadows.  But I am determined to complete my ride as soon as I can, and who knows I might even raise some more. I think I need to see if I can complete my ride in the Chris Hoy Velodrome, as it is warm and dry in there!

My second fund raising project is for Bobath Scotland. I wrote about my visit there last year in an earlier blog.  They provided therapy for boys and girls from across Scotland and I wanted to help them keep up their good work.  As I love books I am holding a Book Bring and Buy for Bobath Scotland.  I am asking people to bring along books they have finished with and to buy some "new" ones, with all the proceeds going to Bobath Scotland.  The Book Bring & Buy will be at 11am-1pm on Saturday 20th October, 2012 in St Mark's Unitarian Church, Castle Terrace, Edinburgh, EH1 2DP (off Lothian Road).

I have also asked some famous authors to donate sign books to raffle at the sale.  I was so excited when I received a sign copy of War Horse from Michael Murpurgo and then Ian Rankin sent two signed books and also Clare Balding. I'm hoping I might get one or two more.  Some people wanted to buy tickets who won't be able to go to the Book Bring and Buy, so mum has set up a Just Giving Page so that people can buy raffle tickets on line.  Here is a link to the page, if you would like to buy tickets.
http://www.justgiving.com/Adam-Bojelian1

My third fundraising project is still hush, hush, but it is the most exciting yet and I will be able to tell you all about it very soon.  I think you will be excited too, when you hear what it is and hopefully it will get your toes tapping.  I'll tell you all about it as soon as I can.....